NF Canada Releases New Resource for the NF Community

VICTORIA, BC- NF Canada has published a book that sheds light on the intimate struggle of living with neurofibromatosis.

 The Disgruntled Body, a book translated from an original French text, Corps chagrin, chronicles the journey of Vivianne as she battles the disorder neurofibromatosis type 1. The narrative provides no scientific information; better yet, it plunges us into the heart of the daily life of the one who is living with this condition.

 Suzanne Houle a teacher and sexologist by training, is originally from Salaberry-de-Valleyfield, where she lived for thirty-five years. She now resides in Saint-Anicet, in southwestern Quebec.

 The book is available in two versions: an electronic format for $15 and a hard copy in a paperback edition that sells for $20.

 To order the book contact the NF Canada office at 1-888-986-3876 or by email at

 Neurofibromatosis is an umbrella name for three distinct complex genetic disorders that share a common manifestation: tumour growth in the tissues that surround nerves. It is pronounced neuro•fibroma•tosis and is commonly referred to as NF. While most of these tumours are benign, they can occasionally become malignant. NF can also cause disfigurement, bone deformities and learning disabilities.

 About NF Canada

Founded in 2003, the organization’s mission is to ensure that all Canadians living with Neurofibromatosis benefit from support, understanding, appropriate medical treatment and the hope that a cure is on the horizon.

 More information can be found at


Contact:         Desirée Sher, Executive Director





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